You are now leaving the Twilight Zone.......
I finished the last treatment of IL2 on December 7th! I feel pretty good, with the exception of the new side effect that I had of joint pain, I feel like I have arthritis in every joint of my body, so ibuprophen has become my new friend.
As usual I do not remember much of the week, but I know that they did something different. Rather than giving me an pre-dose of pain meds, they waited until I "rigored" before they gave me anything. Which might have something to do with the joint pain.
Apparently we watched Rudolph the Red Nosed Reindeer, and I was talking to my Grandpa and asking him for Werthers because my mouth was dry. (He has been gone for almost 6yrs)
I am scheduled to go in for a CT and MRI scan on Dec 21st and I am keeping my fingers and toes crossed that everything is good.
I started loosing my hair about 2 weeks ago, which should not be happening, so I am trying to figure out what is going on-might be thyroid issues etc. I know everyone says that "hair should not define you", but they have never lost hair. It would be easier if it was something that I had planned for, but this typically does not happen with the kind of treatments that I received. So hopefully I will find out more next week.
I am so grateful for the staff at HCI, it was a bitter sweet day when I left on Friday. They made me feel like a real person and made the bumps in my journey a little less painful. They knew me, they knew my quirks- what "home remedies" I brought with me. How much I hated to wear the hospital gown. They laughed at me when I told them I could taste the saline when they would "flush" after the injections, and how I felt the benadryl in my chest after it was injected. They noticed my pedicures and even gave me decorations to decorate my "IV tree".
I may not be a University of Utah fan......but I am a fan of YOU! XOXO
This image was on the board when I arrived on Monday, and yes RC was one of my favorites!
I finished the last treatment of IL2 on December 7th! I feel pretty good, with the exception of the new side effect that I had of joint pain, I feel like I have arthritis in every joint of my body, so ibuprophen has become my new friend.
As usual I do not remember much of the week, but I know that they did something different. Rather than giving me an pre-dose of pain meds, they waited until I "rigored" before they gave me anything. Which might have something to do with the joint pain.
Apparently we watched Rudolph the Red Nosed Reindeer, and I was talking to my Grandpa and asking him for Werthers because my mouth was dry. (He has been gone for almost 6yrs)
I am scheduled to go in for a CT and MRI scan on Dec 21st and I am keeping my fingers and toes crossed that everything is good.
I started loosing my hair about 2 weeks ago, which should not be happening, so I am trying to figure out what is going on-might be thyroid issues etc. I know everyone says that "hair should not define you", but they have never lost hair. It would be easier if it was something that I had planned for, but this typically does not happen with the kind of treatments that I received. So hopefully I will find out more next week.
I am so grateful for the staff at HCI, it was a bitter sweet day when I left on Friday. They made me feel like a real person and made the bumps in my journey a little less painful. They knew me, they knew my quirks- what "home remedies" I brought with me. How much I hated to wear the hospital gown. They laughed at me when I told them I could taste the saline when they would "flush" after the injections, and how I felt the benadryl in my chest after it was injected. They noticed my pedicures and even gave me decorations to decorate my "IV tree".
I may not be a University of Utah fan......but I am a fan of YOU! XOXO
This image was on the board when I arrived on Monday, and yes RC was one of my favorites!
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