Holy Crap.....I finally made it home from the Huntsman Cancer Institute.
My stays in the hospital generally last from Monday morning to Friday afternoon, but this week the nurses decided to "mix it up a bit" so I ended up staying there until Saturday until about 4pm. I felt like Dorothy, crazy dreams and crazy weather- but no matter how hard I clicked my heels together, I could not get home.
They normally give me demorol when I rigor, but this time they decided to give me dilaudid instead. I also started the week off with a head cold so I am sure that didn't help either. I came unprepared this week, I usually take extra clothes that I come home with so this week I figured I would pack lightly.... HA HA HA. When I saw myself in the mirror I thought "Oh my heck, I hope no one RED-NECK-ED-IZED me! Really I wore a wife beater with a black bra....ughh!
The nice thing about having dilaudid was that I was more awake this week, so I rememeber more of the visitors, and more of the nurses. But I also remember the birthdays that I missed and more of the rigors that happened and the "change" that didn't happen, and how much I missed my kids ( I always miss them.....I just don't let it affect me as much)!
So while I was in the hospital I caught an intestinal infection, which meant that I had to be watched more closely and my status was moved to ICU instead of IMU (In my situation, it just meant how much attention and care I got). My blood pressure kept dropping so I had to stay until it became more steady. So everytime a nurse, Dr or visitor came in the room, they had to put on a plastic "robe" and gloves.
So I came home with an extra 18lbs, crazy hair that took over an hour to comb through, ANOTHER prescription, and more itchy dry skin because of the blood pressure cuff :(
After 4 days, I finally feel a little more like a normal person. Only one more week of this IL2 treatment. WOO-HOO!
Everyone have a great Thanksgiving, and don't forget to TELL people in your life how greatful you are for them. You may think they know...but they need to hear it.
Thank you for all of the visitors, family, friends and Doctors and Nurses that have made this journey a little less bumpy.
My stays in the hospital generally last from Monday morning to Friday afternoon, but this week the nurses decided to "mix it up a bit" so I ended up staying there until Saturday until about 4pm. I felt like Dorothy, crazy dreams and crazy weather- but no matter how hard I clicked my heels together, I could not get home.
They normally give me demorol when I rigor, but this time they decided to give me dilaudid instead. I also started the week off with a head cold so I am sure that didn't help either. I came unprepared this week, I usually take extra clothes that I come home with so this week I figured I would pack lightly.... HA HA HA. When I saw myself in the mirror I thought "Oh my heck, I hope no one RED-NECK-ED-IZED me! Really I wore a wife beater with a black bra....ughh!
The nice thing about having dilaudid was that I was more awake this week, so I rememeber more of the visitors, and more of the nurses. But I also remember the birthdays that I missed and more of the rigors that happened and the "change" that didn't happen, and how much I missed my kids ( I always miss them.....I just don't let it affect me as much)!
So while I was in the hospital I caught an intestinal infection, which meant that I had to be watched more closely and my status was moved to ICU instead of IMU (In my situation, it just meant how much attention and care I got). My blood pressure kept dropping so I had to stay until it became more steady. So everytime a nurse, Dr or visitor came in the room, they had to put on a plastic "robe" and gloves.
So I came home with an extra 18lbs, crazy hair that took over an hour to comb through, ANOTHER prescription, and more itchy dry skin because of the blood pressure cuff :(
After 4 days, I finally feel a little more like a normal person. Only one more week of this IL2 treatment. WOO-HOO!
Everyone have a great Thanksgiving, and don't forget to TELL people in your life how greatful you are for them. You may think they know...but they need to hear it.
Thank you for all of the visitors, family, friends and Doctors and Nurses that have made this journey a little less bumpy.
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