It has been a while since I have written, so I figured it was time to update everyone.
I just finished the 2nd week of IL2...my body was able to take all 7 treatments, my mind however I am not sure of.
The one thing that was different this time than it was in the past was that I got "rigors" about two hours after the IV my body would get the chills and I would shake uncontrolably. The nurses were usually able give me demoral before I could feel them too much......but there was a really bad one that I wish I could forget. Thank goodness for my Mom who was there to hold me through it.
I gained 30 lbs in 6 days from all the liquid that they pumped into me to keep me hydrated etc. but that also meant that I got liquid in my lungs and my blood pressure and oxygen levels dropped. They wanted me to take Oxygen home...but being the stubborn red-head that I am, I refused
During a "hot flash" I remember asking the nurse to get all my clothing off the top half of my body....I apologized for being a "diva"....but needless to say, I was having a melt-down. She was very accomodating and helped remove a couple layers, it was quite the task with the PICC lines, blood pressure cuff etc.
I always rememeber people saying that they were so thankful for prayers that were being said for them, and I thought " DUH....why wouldn't you." But when you are the one at the receiving end of those prayers....your perspective completlely changes.
I could not have survived this last week without the prayers, thoughts, fasting and support from the many family and friends. I had a lot of visitors at the hospital, that I do not rememeber physically, but please know your presence was appreciated.
My goal right now is to get rid of this weight, get my kids ready for school (FINALLY) and get back to my normal self.
My next appt is Sept 11 (ughh, I know) and hopefully Dr. Grossman will have news that my treatments are working.
And then I will have one more round of treatment Sept 17th.
Thank you for the meals, thoughts and prayers...they are truly truly appreciated.
XOXO
I just finished the 2nd week of IL2...my body was able to take all 7 treatments, my mind however I am not sure of.
The one thing that was different this time than it was in the past was that I got "rigors" about two hours after the IV my body would get the chills and I would shake uncontrolably. The nurses were usually able give me demoral before I could feel them too much......but there was a really bad one that I wish I could forget. Thank goodness for my Mom who was there to hold me through it.
I gained 30 lbs in 6 days from all the liquid that they pumped into me to keep me hydrated etc. but that also meant that I got liquid in my lungs and my blood pressure and oxygen levels dropped. They wanted me to take Oxygen home...but being the stubborn red-head that I am, I refused
During a "hot flash" I remember asking the nurse to get all my clothing off the top half of my body....I apologized for being a "diva"....but needless to say, I was having a melt-down. She was very accomodating and helped remove a couple layers, it was quite the task with the PICC lines, blood pressure cuff etc.
I always rememeber people saying that they were so thankful for prayers that were being said for them, and I thought " DUH....why wouldn't you." But when you are the one at the receiving end of those prayers....your perspective completlely changes.
I could not have survived this last week without the prayers, thoughts, fasting and support from the many family and friends. I had a lot of visitors at the hospital, that I do not rememeber physically, but please know your presence was appreciated.
My goal right now is to get rid of this weight, get my kids ready for school (FINALLY) and get back to my normal self.
My next appt is Sept 11 (ughh, I know) and hopefully Dr. Grossman will have news that my treatments are working.
And then I will have one more round of treatment Sept 17th.
Thank you for the meals, thoughts and prayers...they are truly truly appreciated.
XOXO
Thank you for letting us feel involved and knowledgeable about what the world is like for you at a VERY difficult time. How you have the focus and presence of mind to put your feelings into words is amazing! Your sense of humor through it all is good medicine, I'm sure. Yes, we have fasted and prayed for you and the family, as many are doing. Your strength inspires and humbles us. Love ya'!
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